Supportive Care Needs and Patient Preferences Among Hemodialysis Patients with Chronic Kidney Disease: A Scoping Review of Evidence for Patient-Centered Kidney Supportive Care
DOI:
https://doi.org/10.55018/janh.v8i2.675Keywords:
Chronic Kidney Disease, Hemodialysis, Kidney Supportive Care, Supportive Care Needs, Patient Preference, Person-Certered Care, Palliative CareAbstract
Background: Patients with Chronic Kidney Disease (CKD) undergoing maintenance Hemodialysis (HD) face physical, psychological, social, and spiritual challenges that reduce quality of life. This scoping review mapped and synthesised evidence on supportive care needs and patient preferences to inform the development of holistic, person-centred, and culturally responsive Kidney Supportive Care (KSC) models for adults receiving maintenance HD.
Methods: This scoping review followed the PRISMA-ScR guidelines and the Arksey and O'Malley methodological framework, guided by the Population–Concept–Context (PCC) approach. Literature searches were conducted on May 25, 2026, across PubMed, Scopus, ScienceDirect, and EBSCOhost. Eligible studies included English- and Indonesian-language publications from 2021–2026 involving adults with CKD receiving maintenance HD. Qualitative, quantitative, and mixed-methods studies, as well as systematic reviews, were included. Study selection, data charting, thematic synthesis, and methodological quality appraisal were conducted using predefined criteria and Joanna Briggs Institute (JBI) critical appraisal tools.
Results: Twelve studies met the inclusion criteria. Four overarching themes were identified: (1) multidimensional supportive care needs, including physical symptom management, psychological support, social and financial assistance, spiritual care, and informational needs; (2) patient preferences for patient-centered care, emphasizing effective communication, shared decision-making, family involvement, and respect for spiritual values; (3) barriers to KSC implementation, including workforce limitations, inadequate psychosocial resources, financial burdens, insufficient professional training, and organizational constraints; and (4) strategies to strengthen KSC through interdisciplinary collaboration, Patient-Reported Outcome Measures (PROMs), family engagement, and integrated palliative care approaches. The review also identified evidence gaps regarding culturally adapted supportive care models, caregiver-support interventions, and implementation strategies in resource-limited settings.
Conclusion: Cultural beliefs are crucial in shaping treatment choices for ENT conditions. Public awareness campaigns by the Ministry of Health and local health authorities are recommended to educate communities on the benefits and risks of traditional medicine while promoting evidence-based healthcare practices.
Downloads
References
Ahn, J. W., Lee, S. M., & Seo, Y. H. (2022). Factors associated with self-care behavior in patients with pre-dialysis or dialysis-dependent chronic kidney disease. PLoS ONE, 17(10 October). https://doi.org/10.1371/journal.pone.0274454
Akpakli Addo, J., & Senoo-Dogbey, V. E. (2025). Exploring Nurses’ Supportive Care Practices for Managing Patients with Chronic Kidney Disease (CKD) in a Tertiary Care Facility in Ghana. SAGE Open Nursing, 11. https://doi.org/10.1177/23779608251350750
Almutary, H., Bonner, A., & Douglas, C. (2013). Symptom burden in chronic kidney disease: A review of recent literature. Journal of Renal Care, 39(3), 140–150. https://doi.org/10.1111/j.1755-6686.2013.12022.x
Alshelleh, S., Alhawari, H., Alhouri, A., Abu-Hussein, B., & Oweis, A. (2023). Level of Depression and Anxiety on Quality of Life Among Patients Undergoing Hemodialysis. International Journal of General Medicine, 16, 1783–1795. https://doi.org/10.2147/IJGM.S406535
Amaludin, M., Arisandi, D., Hidayat, U. R., Akbar, A., Alfikrie, F., Nurpratiwi, N., Hatmalyakin, D., & Safitri, D. (2025). Pendekatan Edukatif dalam Pencegahan Penyakit Gagal Ginjal Kronis pada Kelompok Remaja di Desa Temajuk Kabupaten Sambas. In Jurnal Kreativitas Pengabdian Kepada Masyarakat (PKM) (Vol. 8, Number 3, pp. 1346–1354). https://doi.org/10.33024/jkpm.v8i3.19029
Aromataris, E., Stern, C., Lockwood, C., Barker, T. H., Klugar, M., Jadotte, Y., Evans, C., Ross-White, A., Lizarondo, L., Stephenson, M., McArthur, A., Jordan, Z., & Munn, Z. (2022). JBI series paper 2: tailored evidence synthesis approaches are required to answer diverse questions: a pragmatic evidence synthesis toolkit from JBI. Journal of Clinical Epidemiology, 150, 196–202. https://doi.org/10.1016/j.jclinepi.2022.04.006
Axelsson, L., Benzein, E., Lindberg, J., & Persson, C. (2019). End-of-life and palliative care of patients on maintenance hemodialysis treatment: a focus group study. BMC Palliative Care, 18(1), 89. https://doi.org/10.1186/s12904-019-0481-y
Baay, S., Hemmelgarn, B., Tam-Tham, H., Finlay, J., Elliott, M. J., Straus, S., Beanlands, H., Herrington, G., & Donald, M. (2019). Understanding Adults With Chronic Kidney Disease and Their Caregivers’ Self-Management Experiences: A Qualitative Study Using the Theoretical Domains Framework. Canadian Journal of Kidney Health and Disease, 6. https://doi.org/10.1177/2054358119848126
Badan Kebijakan Pembangunan Kesehatan. (2023). Survei Kesehatan Indonesia 2023 Dalam Angka Data KebijakanTepat. Kementerian Kesehatan Republik Indonesia.
Baragar, B., Schick-Makaroff, K., Manns, B., Love, S., Donald, M., Santana, M., Corradetti, B., Finlay, J., Johnson, J. A., Walsh, M., & Elliott, M. J. (2023). “You need a team”: perspectives on interdisciplinary symptom management using patient-reported outcome measures in hemodialysis care—a qualitative study. Journal of Patient-Reported Outcomes, 7(1). https://doi.org/10.1186/s41687-022-00538-8
Baroleh, M. J., Ratag, B. T., & Langi, F. L. F. (2019). Faktor-Faktor yang Berhubungan Dengan Penyakit Ginjal Kronis Pada Pasien di Instalasi Rawat Jalan Rumah Sakit Umum Pancaran Kasih Manado. In Jurnal Kesehatan Masyarakat Universitas Sam Ratulangi (Vol. 8, Number 7, pp. 1–8).
Beckwith, H., Thomas, N., Adwaney, A., AppELbe, M., Gaffney, H., Hill, P., Moabi, D., Prout, V., Salisbury, E., Webster, P., Tomlinson, J. A. P., & Brown, E. A. (2022). Gender Differences in Experiences and Expectations of Hemodialysis in a Frail and Seriously Unwell Patient Population. Kidney International Reports, 7(11), 2421–2430. https://doi.org/10.1016/j.ekir.2022.08.023
Bello, A. K., Okpechi, I. G., Osman, M. A., Cho, Y., Htay, H., Jha, V., Wainstein, M., & Johnson, D. W. (2022). Epidemiology of haemodialysis outcomes. Nature Reviews Nephrology, 18(6), 378–395. https://doi.org/10.1038/s41581-022-00542-7
Bikbov, B., Purcell, C., Levey, A. S., Smith, M., Abdoli, A., Abebe, M., Adebayo, O. M., Afarideh, M., Agarwal, S. K., Agudelo-Botero, M., Ahmadian, E., Al-Aly, Z., Alipour, V., Almasi-Hashiani, A., Al-Raddadi, R. M., Alvis-Guzman, N., Amini, S., Andrei, T., Andrei, C. L., … Vos, T. (2020). Global, regional, and national burden of chronic kidney disease, 1990–2017: a systematic analysis for the Global Burden of Disease Study 2017. In The Lancet (Vol. 395, Number 10225, pp. 709–733). https://doi.org/10.1016/S0140-6736(20)30045-3
Bulathwatta, D. T., Rudnik, A., & Bidzan, M. (2024). All Good Without Anything Good. Beyond Survival: Understanding the Psychosocial Experiences of Individuals With Chronic Kidney Disease and Their Caregivers in Sri Lanka. Health Expectations, 27(4). https://doi.org/10.1111/hex.14157
Buur, L. E., Bekker, H. L., Søndergaard, H., Kannegaard, M., Madsen, J. K., Khatir, D. S., & Finderup, J. (2024). Shared decision making for patients with kidney failure to improve end-of-life care: Development of the DESIRE intervention. Journal of Clinical Nursing, 33(9), 3498–3512. https://doi.org/10.1111/jocn.17209
Buus, N., Nygaard, L., Berring, L. L., Hybholt, L., Kamionka, S. L., Rossen, C. B., Søndergaard, R., & Juel, A. (2022). Arksey and O′Malleyʼs consultation exercise in scoping reviews: A critical review. Journal of Advanced Nursing, 78(8), 2304–2312. https://doi.org/10.1111/jan.15265
Carney, E. F. (2020). The impact of chronic kidney disease on global health. Nature Reviews Nephrology, 16(5), 251. https://doi.org/10.1038/s41581-020-0268-7
Chao, C. H. Y., Tam, K. W., Su, C. L., Chou, Y. Y., Kuo, T. T., & Kao, J. T. W. (2025). Holistic needs assessment for hospitalized patients with kidney disease: a prospective cross-sectional study. Journal of Nephrology, 38(9), 2821–2829. https://doi.org/10.1007/s40620-025-02427-x
Chilcot, J., Pearce, C. J., Hall, N., Rehman, Z., Norton, S., Griffiths, S., Hudson, J. L., Mackintosh, L., Busby, A., Wellsted, D., Jones, J., Sharma, S., Ormandy, P., Palmer, N., Schmill, P., Da Silva-Gane, M., Morgan, N., Poulikakos, D., Veighey, K., … Farrington, K. (2025). Depression and anxiety in people with kidney disease: understanding symptom variability, patient experience and preferences for mental health support. Journal of Nephrology, 38(2), 675–686. https://doi.org/10.1007/s40620-024-02194-1
Cipta, D. A., Andoko, D., Theja, A., Utama, A. V. E., Hendrik, H., William, D. G., Reina, N., Handoko, M. T., & Lumbuun, N. (2024). Culturally sensitive patient-centered healthcare: a focus on health behavior modification in low and middle-income nations—insights from Indonesia. In Frontiers in Medicine (Vol. 11). https://doi.org/10.3389/fmed.2024.1353037
Corman, M., Dambrun, M., Ginzac, A., & Ménard, K. (2025). Exploring the concept of Total Pain in contemporary oncology palliative care: a qualitative study on patients’ resources. BMC Palliative Care, 24(1). https://doi.org/10.1186/s12904-025-01719-0
Davison, S. N., Pommer, W., Brown, M. A., Douglas, C. A., Gelfand, S. L., Gueco, I. P., Hole, B. D., Homma, S., Kazancıoğlu, R. T., Kitamura, H., Koubar, S. H., Krause, R., Li, K. C., Lowney, A. C., Nagaraju, S. P., Niang, A., Obrador, G. T., Ohtake, Y., Schell, J. O., … Brennan, F. P. (2024). Conservative kidney management and kidney supportive care: core components of integrated care for people with kidney failure. Kidney International, 105(1), 35–45. https://doi.org/10.1016/j.kint.2023.10.001
de Barbieri, I., Strini, V., Noble, H., Amatori, S., & Sisti, D. (2022). Nurse-perceived facilitators and barriers to palliative care in patients with kidney disease: A European Delphi survey. Journal of Renal Care, 48(1), 49–59. https://doi.org/10.1111/jorc.12371
de Barbieri, I., Strini, V., Noble, H., Carswell, C., Rocchi, M. B. L., & Sisti, D. (2024). Facilitators and Barriers to Receiving Palliative Care in People with Kidney Disease: Predictive Factors from an International Nursing Perspective. Nursing Reports, 14(1), 220–229. https://doi.org/10.3390/nursrep14010018
Deng, L., Guo, S., Liu, Y., Zhou, Y., Liu, Y., Zheng, X., Yu, X., & Shuai, P. (2025). Global, regional, and national burden of chronic kidney disease and its underlying etiologies from 1990 to 2021: a systematic analysis for the Global Burden of Disease Study 2021. BMC Public Health, 25(1). https://doi.org/10.1186/s12889-025-21851-z
Diaz-Martinez, J., Leon-Morris, S., Delgado-Enciso, I., Hernández-Fuentes, G. A., Delgado-Enciso, O. G., Stanco, G., Kallus, L., Jean-Pierre, A., Duran, C., Madruga-Reyes, Y., Lopez, B., Mancilla, J., Parra-Vidal, L., & Hospital, M. M. (2026). An Integrated, Evidence-Guided Framework for CKD Self-Management: Behavioral Mechanisms, Implementation Strategies, and Real-World Application. Kidney and Blood Pressure Research. https://doi.org/10.1159/000552085
Dobrescu, A. I., Nussbaumer-Streit, B., Klerings, I., Wagner, G., Persad, E., Sommer, I., Herkner, H., & Gartlehner, G. (2021). Restricting evidence syntheses of interventions to English-language publications is a viable methodological shortcut for most medical topics: a systematic review. Journal of Clinical Epidemiology, 137, 209–217. https://doi.org/10.1016/j.jclinepi.2021.04.012
Fletcher, B. R., Damery, S., Aiyegbusi, O. L., Anderson, N., Calvert, M., Cockwell, P., Ferguson, J., Horton, M., Paap, M. C. S., Sidey-Gibbons, C., Slade, A., Turner, N., & Kyte, D. (2022). Symptom burden and health-related quality of life in chronic kidney disease: A global systematic review and meta-analysis. PLoS Medicine, 19(4). https://doi.org/10.1371/journal.pmed.1003954
Francis, A., Harhay, M. N., Ong, A. C. M., Tummalapalli, S. L., Ortiz, A., Fogo, A. B., Fliser, D., Roy-Chaudhury, P., Fontana, M., Nangaku, M., Wanner, C., Malik, C., Hradsky, A., Adu, D., Bavanandan, S., Cusumano, A., Sola, L., Ulasi, I., & Jha, V. (2024). Chronic kidney disease and the global public health agenda: an international consensus. Nature Reviews Nephrology, 20(7), 473–485. https://doi.org/10.1038/s41581-024-00820-6
Gayathri M, S., Naik, B., Ghoshal, A., Damani, A., & Nagaraju, S. P. (2025). Profiling mortality patterns and place of death in patients on maintenance hemodialysis: a retrospective study in a tertiary care academic hospital in India. BMC Palliative Care, 24(1). https://doi.org/10.1186/s12904-025-01748-9
González-Bedat, M. C., Rosa-Diez, G., & Correa-Rotter, R. (2023). Advances in Hemodialysis in the Last Decade in Latin America. Revista de Investigacion Clinica; Organo Del Hospital de Enfermedades de La Nutricion, 75(6), 300–308. https://doi.org/10.24875/RIC.23000224
Gunarathne, T. G. N. S., Tang, L. Y., Lim, S. K., Nanayakkara, N., Damayanthi, H. D. W. T., & Abdullah, K. L. (2022). Factors Associated with Symptom Burden in Adults with Chronic Kidney Disease Undergoing Hemodialysis: A Prospective Study. International Journal of Environmental Research and Public Health, 19(9). https://doi.org/10.3390/ijerph19095540
Gurung, S., & Devkota, N. (2025). Quality of life among hemodialysis patients in a referral center in Kathmandu: A mixed method study. Plos One, 20(11 November). https://doi.org/10.1371/journal.pone.0335990
Haneef, S., & Abdullah, M. (2024). Palliative Care Needs and Symptom Burden in Patients Undergoing Maintenance Hemodialysis: A Systematic Review. Journal of Healthcare Sciences, 04(05), 201–215. https://doi.org/10.52533/johs.2024.40502
Harrington, C. L., Bosco, C. M., Wightman, S. C., & Shakhsheer, B. A. (2026). The ethical problems with informed consent: How inconsistencies undermine patient autonomy. American Journal of Surgery, 253, 116821. https://doi.org/10.1016/j.amjsurg.2026.116821
Hill, N. R., Fatoba, S. T., Oke, J. L., Hirst, J. A., O’Callaghan, C. A., Lasserson, D. S., & Hobbs, F. D. R. (2016). Global prevalence of chronic kidney disease - A systematic review and meta-analysis. PLoS ONE, 11(7). https://doi.org/10.1371/journal.pone.0158765
Hole, B., Hemmelgarn, B., Brown, E., Brown, M., McCulloch, M. I., Zuniga, C., Andreoli, S. P., Blake, P. G., Couchoud, C., Cueto-Manzano, A. M., Dreyer, G., Garcia Garcia, G., Jager, K. J., McKnight, M., Morton, R. L., Murtagh, F. E. M., Naicker, S., Obrador, G. T., Perl, J., … Caskey, F. J. (2020). Supportive care for end-stage kidney disease: an integral part of kidney services across a range of income settings around the world. Kidney International Supplements, 10(1), e86–e94. https://doi.org/10.1016/j.kisu.2019.11.008
Htay, H., Bello, A. K., Levin, A., Lunney, M., Osman, M. A., Ye, F., Ashuntantang, G. E., Bellorin-Font, E., Gharbi, M. B., Davison, S. N., Ghnaimat, M., Harden, P., Jha, V., Kalantar-Zadeh, K., Kerr, P. G., Klarenbach, S., Kovesdy, C. P., Luyckx, V. A., Neuen, B., … Johnson, D. W. (2021). Hemodialysis Use and Practice Patterns: An International Survey Study. American Journal of Kidney Diseases, 77(3), 326-335.e1. https://doi.org/10.1053/j.ajkd.2020.05.030
Imran Pashar, Sudirman Efendi, & Sardi Anto. (2023). Skrining Tingkat Pengetahuan Penyakit Ginjal Kronis Pada Masyarakat Di Wilayah Kerja Puskesmas Bangkala. Jurnal Informasi Pengabdian Masyarakat, 1(2), 187–191. https://doi.org/10.47861/jipm-nalanda.v1i2.447
Indrayani, U. D., & Utami, K. D. (2022). Deteksi Dini Penyakit Ginjal Kronis pada Pasien Hipertensi dan Diabetes Melitus di Puskesmas Srondol. In Jurnal ABDIMAS-KU: Jurnal Pengabdian Masyarakat Kedokteran (Vol. 1, Number 1). Jurnal Pengabdian Masyarakat Kedokteran. https://doi.org/10.30659/abdimasku.1.1.34-38
Irawati, D., Natashia, D., Slametiningsih, S., Latifah, N., Fauzi, A., & Handayani, R. (2024). Pelatihan Pengkajian Komprehensif Perubahan Fisik, Psikososial, dan Frailty Bagi Perawat dalam Meningkatkan Kualitas Pelayanan Pasien Hemodialisis. In Jurnal Kreativitas Pengabdian Kepada Masyarakat (PKM) (Vol. 7, Number 3, pp. 1187–1200). https://doi.org/10.33024/jkpm.v7i3.13318
Jadoul, M., Aoun, M., & Masimango Imani, M. (2024). The major global burden of chronic kidney disease. The Lancet Global Health, 12(3), e342–e343. https://doi.org/10.1016/S2214-109X(24)00050-0
Kalantar-Zadeh, K., Lockwood, M. B., Rhee, C. M., Tantisattamo, E., Andreoli, S., Balducci, A., Laffin, P., Harris, T., Knight, R., Kumaraswami, L., Liakopoulos, V., Lui, S. F., Kumar, S., Ng, M., Saadi, G., Ulasi, I., Tong, A., & Li, P. K. T. (2022). Patient-centred approaches for the management of unpleasant symptoms in kidney disease. Nature Reviews Nephrology, 18(3), 185–198. https://doi.org/10.1038/s41581-021-00518-z
Kasih Maharani, V., Harwina Widya Astuti, & Sinta Fresia. (2025). Implementasi Breathing Exercise Terhadap Fatigue pada Pasien Hemodialisa Di RSAU dr. Esnawan Antariksa. In Jurnal Manajemen Kesehatan dan Keperawatan (Vol. 2, Number 1, pp. 33–38). https://doi.org/10.35968/4gkshn62
Krisdianto, B. F., Dahlia, D., & Waluyo, A. (2024). Embracing family presence: exploring the reasons for family decisionmaking dependence on in-hospital palliative care for cancer patients. In Healthcare in Low-Resource Settings (Vol. 12, Number 3). https://doi.org/10.4081/hls.2024.12097
Kristanti, M. S., Kusmaryanto, & Effendy, C. (2021). Common ethical dilemmas of family caregivers of palliative patients in Indonesia. Belitung Nursing Journal, 7(3), 246–250. https://doi.org/10.33546/bnj.1457
Kristian, E. H., Andri, F., & Hermawan, S. M. (2025). Emotional Support and Family Strategies for Patients with Chronic Kidney Disease Undergoing Hemodialysis. Indonesian Journal of Nursing and Health Sciences, 6(1), 69–80. https://doi.org/10.37287/ijnhs.v6i1.6503
Lanini, I., Samoni, S., Husain-Syed, F., Fabbri, S., Canzani, F., Messeri, A., Mediati, R. D., Ricci, Z., Romagnoli, S., & Villa, G. (2022). Palliative Care for Patients with Kidney Disease. Journal of Clinical Medicine, 11(13). https://doi.org/10.3390/jcm11133923
Li, M. J., Liu, H. Y., Zhang, Y. Q., Li, S. R., Zhang, J. H., & Li, R. (2025). Global burden of chronic kidney disease and its attributable risk factors (1990-2021): an analysis based on the global burden of disease study. Frontiers in Endocrinology, 16. https://doi.org/10.3389/fendo.2025.1563246
Lianti, D., & Rosyid, F. N. (2024). Family support and self-care management of patients with chronic kidney disease undergoing hemodialysis. Malahayati International Journal of Nursing and Health Science, 7(8), 1025–1032. https://doi.org/10.33024/minh.v7i8.291
Lu, Y., Zhai, S., Liu, Q., Dai, C., Liu, S., Shang, Y., & Chen, C. (2024). Correlates of symptom burden in renal dialysis patients: a systematic review and meta-analysis. Renal Failure, 46(2). https://doi.org/10.1080/0886022X.2024.2382314
Ma, S. J., Wang, W. J., Tang, M., Chen, H., & Ding, F. (2021). Mental health status and quality of life in patients with end-stage renal disease undergoing maintenance hemodialysis. In Annals of Palliative Medicine (Vol. 10, Number 6, pp. 6112–6121). https://doi.org/10.21037/apm-20-2211
Maisyaroh, A., Widianto, E. P., Kurnianto, S., & Rizky, H. M. (2024). Spiritual Support In Chronic Renal Failure Patients With Hemodialysis : A Systematic Literature Review. Fundamental and Management Nursing Journal, 7(2), 66–76. https://doi.org/10.20473/fmnj.v7i2.48589
Makmun, A., Satirapoj, B., Tuyen, D. G., Foo, M. W. Y., Danguilan, R., Gulati, S., Kim, S., Bavanandan, S., Chiu, Y. W., & Tang, S. C. W. (2025). The burden of chronic kidney disease in Asia region: a review of the evidence, current challenges, and future directions. Kidney Research and Clinical Practice, 44(3), 411–433. https://doi.org/10.23876/j.krcp.23.194
Manuilova, I., Bossenz, J., Weise, A. B., Boehm, D., Strantz, C., Unberath, P., Reimer, N., Metzger, P., Pauli, T., Werle, S. D., Schulze, S., Hiemer, S., Ustjanzew, A., Kestler, H. A., Busch, H., Brors, B., & Christoph, J. (2024). Identifications of Similarity Metrics for Patients With Cancer: Protocol for a Scoping Review. JMIR Research Protocols, 13. https://doi.org/10.2196/58705
Mark, P. B., Stafford, L. K., Grams, M. E., Aalruz, H., Abd ElHafeez, S., Abdelgalil, A. A., Abdulkader, R. S., Abeywickrama, H. M., Abiodun, O. O., Abramov, D., Abrar, M. M., Abreu, L. G., Abubakar, B., Aburuz, S., Addo, I. Y., Adegboye, O. A., Adegoke, N. A., Adeyeoluwa, T. E., Adnani, Q. E. S., … Coresh, J. (2025). Global, regional, and national burden of chronic kidney disease in adults, 1990–2023, and its attributable risk factors: a systematic analysis for the Global Burden of Disease Study 2023. The Lancet, 406(10518), 2461–2482. https://doi.org/10.1016/S0140-6736(25)01853-7
Marsh, S., Varghese, A., Snead, C. M., Hole, B. D., O’Hara, D. V., Agarwal, N., Stallworthy, E., Caskey, F. J., Smyth, B. J., & Ducharlet, K. (2024). A Multinational, Multicenter Study Mapping Models of Kidney Supportive Care Practice. Kidney International Reports, 9(7), 2198–2208. https://doi.org/10.1016/j.ekir.2024.04.055
Martina, D., Kustanti, C. Y., Dewantari, R., Sutandyo, N., Putranto, R., Shatri, H., Effendy, C., van der Heide, A., van der Rijt, C. C. D., & Rietjens, J. A. C. (2022). Advance care planning for patients with cancer and family caregivers in Indonesia: a qualitative study. BMC Palliative Care, 21(1). https://doi.org/10.1186/s12904-022-01086-0
Matthews, M., McKeaveney, C., Noble, H., & Reid, J. (2024). Exploring the unmet needs and experiences of informal caregivers of patients with end-stage kidney disease (ESKD) receiving haemodialysis – a qualitative study. PLoS ONE, 19(5 May). https://doi.org/10.1371/journal.pone.0302525
Nair, A., & Borkar, N. (2023). Significance of including grey literature search in systematic reviews and meta-analyses. Saudi Journal of Anaesthesia, 17(2), 295–296. https://doi.org/10.4103/sja.sja_635_22
Pondaag, F. A., Mariana, D., & Ahmad, M. (2024). Literasi Kesehatan Berhubungan Dengan Self Care Management Pasien Penyakit Ginjal Kronik Yang Menjalani Hemodialisis. In Jurnal Keperawatan Tropis Papua (Vol. 7, Number 1, pp. 8–12). https://doi.org/10.47539/jktp.v7i1.376
Qin, K., Qing, J., Wang, Q., & Li, Y. (2024). Epidemiological shifts in chronic kidney disease: a 30-year global and regional assessment. BMC Public Health, 24(1). https://doi.org/10.1186/s12889-024-21065-9
Saeed, F., Jawed, A., Gazaway, S., Hall, R. K., Klein-Fedyshin, M., Bowling, B., & Schell, J. O. (2025). Supporting Shared Decision-Making in Life-Altering Kidney Therapy Decisions for Older Adults: A Review. In JAMA Internal Medicine (Vol. 185, Number 12, pp. 1479–1488). https://doi.org/10.1001/jamainternmed.2025.5554
Saleem, S. (2026). Argument for Consensual Paternalism in Shared Decision-Making: Rediscovering Autonomy in Western Bioethics. Bioethics, 40(1), 21–26. https://doi.org/10.1111/bioe.70003
Şanli, M. E., Dinç, M., Öner, U., Buluş, M., Çiçek, İ., & Doğan, İ. (2023). The Role of Spirituality in Anxiety and Psychological Resilience of Hemodialysis Patients in Turkey. Journal of Religion and Health, 62(6), 4297–4315. https://doi.org/10.1007/s10943-023-01855-y
Satirapoj, B., Tantiyavarong, P., Chuasuwan, A., Lumpaopong, A., Limbutara, K., Kiattilunthorn, K., Thammavaranucupt, K., Lumlertgul, N., Thimachai, P., Rianthavorn, P., Pichitporn, W., Chotmongkol, W., Lekhyananda, S., Wongpraphairot, S., Vorrapittayaporn, C., Keereewan, N., Spilles, N., Aiyasanon, N., Singhatis, P., … Ophascharoensuk, V. (2025). Thailand Renal Replacement Therapy Registry 2023: Epidemiology and Trends in Incident Dialysis Patients. Journal of the Nephrology Society of Thailand, 31(2), 105–122. https://doi.org/10.63555/jnst.2025.277563
Schneider, A. R., Ravani, P., King-Shier, K. M., Quinn, R. R., MacRae, J. M., Love, S., Oliver, M. J., Hiremath, S., James, M. T., Ortiz, M., Manns, B. R., & Elliott, M. J. (2023). Alignment Among Patient, Caregiver, and Health Care Provider Perspectives on Hemodialysis Vascular Access Decision-Making: A Qualitative Study. Canadian Journal of Kidney Health and Disease, 10. https://doi.org/10.1177/20543581231215858
Shahgholian, N., & Yousefi, H. (2015). Supporting hemodialysis patients: A phenomenological study. Iranian Journal of Nursing and Midwifery Research, 20(5), 626–633. https://doi.org/10.4103/1735-9066.164514
Sher, J., Aradhya, G., Lei, A., Zhangchen, B., Grant, L., Pullen, S., Tully, P. J., & Schumacher, T. (2025). Supportive care in life-limiting, non-malignant chronic disease: scoping review. BMJ Supportive and Palliative Care, 16, 251 – 261. https://doi.org/10.1136/spcare-2025-005572
Supriatin, T., Angella Nur, M., Intan Ayu Maharani Putri, Nurkhalifah Khumaeroh, Rizky Adhitya Setiawan, & Ramadhan, R. F. (2025). Kualitas Hidup Pada Pasien Gagal Ginjal Kronik (GGK). Jurnal Mahasiswa Ilmu Kesehatan, 3(1), 116–133. https://doi.org/10.59841/jumkes.v3i1.2233
Thijsen, A., Masser, B., Davison, T. E., & Williamson, A. (2024). Researchers’ views on and practices of knowledge translation: an international survey of transfusion medicine researchers. Implementation Science Communications, 5(1). https://doi.org/10.1186/s43058-024-00546-3
Thurlow, J. S., Joshi, M., Yan, G., Norris, K. C., Agodoa, L. Y., Yuan, C. M., & Nee, R. (2021). Global epidemiology of end-stage kidney disease and disparities in kidney replacement therapy. American Journal of Nephrology, 52(2), 98–107. https://doi.org/10.1159/000514550
Utami, I. A. A., Santhi, D. G. D. D., & Lestari, A. A. W. (2020). Prevalensi dan komplikasi pada penderita gagal ginjal kronik yang menjalani hemodialisa di Rumah Sakit Umum Pusat Sanglah Denpasar tahun 2018. Intisari Sains Medis, 11(3), 1216–1221. https://doi.org/10.15562/ism.v11i3.691
van der Horst, D. E. M., Hofstra, N., van Uden-Kraan, C. F., Stiggelbout, A. M., van den Dorpel, M. A., Pieterse, A. H., & Bos, W. J. W. (2023). Shared Decision Making in Health Care Visits for CKD: Patients’ Decisional Role Preferences and Experiences. American Journal of Kidney Diseases, 82(6), 677–686. https://doi.org/10.1053/j.ajkd.2023.04.012
Wang, X., Mo, Y., Yuan, Y., Zhou, Y., Chen, Y., Sheng, J., & Liu, J. (2023). Exploring the influencing factors of unmet palliative care needs in Chinese patients with end-stage renal disease undergoing maintenance hemodialysis: a cross-sectional study. BMC Palliative Care, 22(1). https://doi.org/10.1186/s12904-023-01237-x
Wang, X., Shi, Q., Mo, Y., Liu, J., & Yuan, Y. (2022). Palliative care needs and symptom burden in younger and older patients with end-stage renal disease undergoing maintenance hemodialysis: A cross-sectional study. International Journal of Nursing Sciences, 9(4), 422–429. https://doi.org/10.1016/j.ijnss.2022.09.015
Wang, Y., Qiu, Y., Ren, L., Jiang, H., Chen, M., & Dong, C. (2024). Social support, family resilience and psychological resilience among maintenance hemodialysis patients: a longitudinal study. BMC Psychiatry, 24(1). https://doi.org/10.1186/s12888-024-05526-4
Winner, N. O., Christianah, O. O., Oluwadarasimi, A. F., Marvelous, M. S.-A., Opeyemi, O. A., & Monisayo, O. K. (2025). Lived experiences of patients with chronic kidney diseases undergoing dialysis in Uniosun Teaching Hospital, Osogbo, Osun State, Nigeria. World Journal of Advanced Research and Reviews, 25(3), 411–419. https://doi.org/10.30574/wjarr.2025.25.3.0685
Wolfenden, L., Mooney, K., Gonzalez, S., Hall, A., Hodder, R., Nathan, N., Yoong, S., Ditton, E., Sutherland, R., Lecathelinais, C., & McCrabb, S. (2022). Increased use of knowledge translation strategies is associated with greater research impact on public health policy and practice: an analysis of trials of nutrition, physical activity, sexual health, tobacco, alcohol and substance use interventions. Health Research Policy and Systems, 20(1). https://doi.org/10.1186/s12961-022-00817-2
Wong, T. S., Chen, Q., Liu, T., Yu, J., Gao, Y., He, Y., Zhong, Q., Tan, Z., Liu, T., Lu, J., Huang, J., Zhang, C. J. P., Yin, L., Hu, B., & Ming, W. K. (2024). Patients, healthcare providers, and general population preferences for hemodialysis vascular access: a discrete choice experiment. Frontiers in Public Health, 12. https://doi.org/10.3389/fpubh.2024.1047769
Xie, K., Cao, H., Ling, S., Zhong, J., Chen, H., Chen, P., & Huang, R. (2025). Global, regional, and national burden of chronic kidney disease, 1990-2021: a systematic analysis for the global burden of disease study 2021. Frontiers in Endocrinology, 16. https://doi.org/10.3389/fendo.2025.1526482
Ying, M., Shao, X., Qin, H., Yin, P., Lin, Y., Wu, J., Ren, J., & Zheng, Y. (2024). Disease Burden and Epidemiological Trends of Chronic Kidney Disease at the Global, Regional, National Levels from 1990 to 2019. Nephron, 148(2), 113–123. https://doi.org/10.1159/000534071
Zhang, S., Zhu, W., Xia, J., Zheng, Y., Li, X., Chen, L., Ning, X., & Qin, Y. (2023). Urgency for Kidney Palliative Care in Chinese Maintenance Hemodialysis Patients. Kidney International Reports, 8(12), 2794–2801. https://doi.org/10.1016/j.ekir.2023.09.006
Zheng, X., Yang, Z., Xu, L., & Wang, A. (2025a). Decoding Symptom Complexity for Clinical Nursing Assessment: A Systematic Review of Simplification Strategies in Hemodialysis Patients. In Worldviews on Evidence-Based Nursing (Vol. 22, Number 2). https://doi.org/10.1111/wvn.70007
Zheng, X., Yang, Z., Xu, L., & Wang, A. (2025b). Insights into the complexities of symptom management for hemodialysis patients: a systematic review of qualitative studies. Health Psychology Review, 19(3), 615–658. https://doi.org/10.1080/17437199.2025.2496230
Zisman-Ilani, Y., Rhee, C. M., Ammary, F. Al, & Kalantar-Zadeh, K. (2026). Shared decision making and decision aids in the management of kidney disease and renal replacement treatment options. Current Opinion in Nephrology and Hypertension, 35(1), 13–20. https://doi.org/10.1097/MNH.0000000000001140
Zuñiga-San Martin, C. (2021). Chronic Kidney Disease Continuous Care (Supportive and Conservative Treatment). In Frailty and Kidney Disease (pp. 183–196). https://doi.org/10.1007/978-3-030-53529-2_14
Downloads
Additional Files
Published
How to Cite
Issue
Section
License
Copyright (c) 2026 Meyla Sari Handayani, Kusman Ibrahim, Laili Rahayuwati, Naufal Hafizh Fauzan
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
